.... When Will Enough Be Enough?!
I was going to rant and rave, the way I did as I prayer journaled to God last night (which is the only way I can pray and keep on topic for more than one nano second. I kid you not). When will it be enough, God?
It wasn't enough to lose Jim. It wasn't enough to know that I will die someday never knowing if my kids will die of the same thing that Jim did (and yes, no parent dies knowing their kids will be ok, but some may have drawn the "lucky" straw to add to that unknown). Was the tumor and surgery and the hell of that year not enough? And now this .... a "chronic disease". When WILL enough be enough? Will it be the day I turn my back on everything I've known and believed? Will that do it? What will it take, God, for You to let me just live .... happy, content, at peace, and pain free? For at least a stinking 6 months or maybe, just maybe .... a year?!
So that's what this post was going to be about.
That, and the fact that so many people think that I have so many friends around all of the time when, in actuality, I don't. Only one has contacted me this week (other than those of you through this blog). And that has felt very lonely. I hate it when people assume that you already have a lot of friends so you must be busy, thus they don't want to intrude.
Busy, I have not been.
Lonely ... I have been ... very much.
But again, that's not what this post is about ..... now.
You see my mornings start off quite painful. Every joint hurts and it takes an hour or two for that to stop. Thankfully, very, very thankfully, it is stopping after an hour or so, thanks to the steroids, I guess. Because before, it didn't stop. Mostly ever.
And then the evenings start to get bad again and the joints start hurting.
Thankfully, very, very thankfully, they are not hurting as bad as they were a week ago. Yes, they hurt, but I can deal with this hurt.
So I am choosing to be thankful.
And I am choosing to try, very, very hard .... to let my anger go with God. I'm not going to lie .... it's not easy and I can't just .... Poof! ..... do it. It takes time.
But I am thankful for more things than the steroids.
And it took a call from Son #1 to help me realize how thankful I am and how blessed I am.
Have I told you before that I have 6 great children? Because I do.
And I love them more than life itself, as do all of you parents out there.
And I miss 5 of them right now, very, very much.
But I digress.
Son #1 and I talked for about an hour. It was great.
We talked about his plans for the future and how excited he is about his life and his decisions right now.
I love that.
We talked about my health and how that should never, EVER come before my children, and their desire to call me, but to not want me to be too tired. Or to add to my struggling.
Hopefully we cleared that one up. I think we did. :)
He asked me if I'm at the point now where I just look up at God and say, "OK, give me what you've got. I can take whatever you want to dish out."
I chuckled a bit .... and then cried .... and then told him what I really have been saying to God this week.
(See paragraph #1).
We talked about politics and our views of things in this nation that need to change and the fact that Christians .... Christians who know that God is love and grace and holds no hate for any person He has created .... these Christians need to stand up against the "Christians" who spew forth hate to select parts of our population, those who claim God hates certain people .... not the sin, but the person committing the sin.
We both agreed that we haven't read those words in our Bible.
We talked about the cost of living and college and money needed to attend/finish college (!) and the cost of living all over the U.S.
And then he told me about a young man he graduated with. Not a person he knows well, but a student who shared quite a few classes with him.
This young man, aged 20 or 21, I guess .... has a horrifying brain tumor. A devastating, non-operative, worst case scenario brain tumor. And I cried for that young man. And for his parents. And for what was .... and what could have been. I cried for their struggle to keep him alive, but yet in keeping him alive, wondering how to balance the length of time against the pain, ravaging destruction and illness that it takes to keep him alive. Alive for maybe .... maybe .... a year.
I'm still crying for him. And for them.
And I wonder, as his parents fervently pray and hope for a miracle .... do they, too, wonder .... "When will enough be enough?"
And in crying for them .... and for what will most likely not be ..... I had to stop feeling sorry for myself.
I have to pick myself up and keep moving forward.
Not that I believe (anymore ..... not for the last 3 1/2 years) that everyone is ALWAYS able to do that. Because sometimes, as I can very well attest, it's just not physically or emotionally possible. When you are fighting to decide to stay here on earth, or to stop the pain because you can't take it for one more minute, it is not possible to pull yourself up.
I know. I was there.
Was.
But now I am here.
Still feeling crappy about this auto immune thing .... whichever one it turns out to be.
Still wishing that it weren't true and that I'd wake up from a nightmare. Again.
Still wishing ..... when wishes don't often come true.
Sometimes, yes. Often? No.
So rather than wishing for what will not be, rather than focusing on what was and what should have been, I'm focusing on now.
And on my children.
And on my job.
And on continuing to do all I kind to look outside of my pitiful self, remember how very blessed I am, and try to keep encouraging and helping those who are widowed.
Because that's one reason that I'm still here.
And ultimately, my "head knowledge" of God will bring my heart back to him. Ultimately.
It did before .... in a much darker, colder, lonelier place than this.
This, my friends .... is cake.
My heart hurts and feels far from the God who loves me and wants the best for me, but my head knows that He's there.
And that He hurts when I hurt.
And that life is ..... well, it's just what it is.
And damnit, I'm going to continue to make the best of it.
Because I have been, I am .... and I will continue to be .... blessed beyond measure.
Happy Thursday, Peeps.
:)
UPDATE:
I heard this song less than an hour after I posted this.
T.
A.
N.
W.
10 comments:
Oh Janine - sending huge hugs and love across the miles between. You are a blessing to so many - chronic pain is so debilitating and when coupled with the darkness of loss and change it can be so harsh. I have not been visiting many blogs lately - I will be more faithful to you my friend. Sending love and light your way. xoxo
I wish I could be there to give you a big hug; will have to wait until we finally meet in person at Camp Widow in August! Dealing with a chronic illness is very very very tiring. Both emotionally and physically. I was diagnosed with RA at the age of 15 so barely remember life without it, and, although I am under wonderful control as we speak, I can understand your frustration, fatigue, depression, all of it. Wish there was something I could do to take it away or something I could say.
Will be praying, continually, not only for you, but for your son's classmate and his family. Seems when I am maddest at God and asking my own "when is it enough" question he manages to throw a little perspective at me. Guess that is all part of the plan.....(one benefit of my job working with babies with developmental issues, I rarely have a day when I don't come home realizing that my worst is better than many peoples best). Hang in there - so looking forward to meeting you in August - you have made SUCH a difference in my life!
Okay, Janine. Guess this ends my perpetual lurking. I've heard this song in the car the last few days and I've thought of you. Now I'm sorry I didn't write sooner. I'm just thankful He knew you needed it even more than I did. You continue to be in my prayers and I'll send you a separate e-mail on the chronic pain thing. Take care and if I were in your neck of the woods, I'd love to come hang with you. Your Canton roomie.
So sorry that you are dealing with all this. Wish that all of us felt free to be more open with each other. Think we all try to hide our pain from each other (physical and emotional) and make everyone think that we are doing much better that we actually are. Not sure how we can help each other as long as we do not know the needs.
Sorry for the loneliness and I know that even when there is someone in the home, loneliness can still be present. I think of you often and always read the blog, but rarely comment as I, too, assume you have this great real life support system in place.
Am so glad that things are going well for the children. That is a great thing.
Thanks for sharing.
one of my current favorite songs; bought the CD the day I first heard it and play it in the car ALL the time now
This song is amazing. Such a wonderful reminder that even when we don't feel Him, He's still always here with us!
Oh, Janine, I love you! You're right--T.A.N.W. Thank you for adding this update and sharing this beautiful song of faith and hope. Love, prayers, and hugs, Jo Ann
Early in my marriage, I was crying about something and my husband said, Oh you are just feeling sorry for yourself. Best thing he ever said to me, cause it made me angry and I decided right there and then that I would never feel sorry for myself again. It has served me well. Sadly there is always someone worse off it seems. So I want you to know that I am really wanting you to feel better. I know a lot of people are asking God to give you a break. I do believe you deserve one.
I could have written every word, Janine. The loss. The kids. The physical pain. The faith. And the bloody-minded determination to keep going, one step, one day at a time, and not be beaten down. The pain doesn't go - neither the physical or emotional, but it softens in time. I WILL NOT spend the rest of my life feeling sorry for myself. Trying to reach a plateau when the pain is just there in the background. Part of me. I want those adventures. You have been adventuring, and it is good. SO good. Lots of love, sweet friend.
They played that song in church last Sunday and I had to look it up and get the CD also. My conversations with God lately have also been of the "Seriously, God? This too?" variety. But Jacob wrestled with God, and I guess I'm suppose to for a bit too. Hang in there and I will be praying for you.
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