Wednesday, June 29, 2011

Thank you ....

.... to each of you who came out (some out of lurkdom) to post helpful suggestions and tons of support.
I really, really needed that.
Last night was a bad night.
A very bad night.

I struggled to stay up until 8:00 or so before going back to bed.
Those 3 - 4 hours were very dark.
I hate the dark.

I think that my body is now telling me that it's time to rest.  I've been going and going and going, trying to not think about what I may, or may not, have going on inside of me.
I know that part of having R.A. is needing to rest .... a lot.
And I am not good at resting.
And I abhor the thought of "having to rest" .... especially on a regular basis.  It makes me feel like I'm 105 or quite sickly .... and I'm neither.

But yesterday my body took control of my mind and would not let me intercede.  I could not control it for one more hour.
And that was very, very depressing.

This was not how I saw my life going.
Even after Jim's death.
I am sick and tired of the things that seem to have been thrown at me since then, because I guess that having my husband die was just not enough.

So, today I feel better.  I made it, barely, to my 9:00 PT appointment.  I didn't want to, but I did.
Then I got a couple of things done around the house.
And now I am ready for another nap.

On the up side .... I think that the steroids are starting to help.
On the down side ..... that means that I definitely have this disease.
And that sucks.
And is depressing.

Because it's hard enough to be 51 and have the hope of ever meeting another man who will love me hugely, but to have to add to the baggage of RA in there ...... that hope seems to be dying.

Yes, I know that there are some great meds out there, so that gives me hope.
And I know my doctor won't keep me on the steroids for very long.  He just wanted to do this for 2 weeks as a test to see if they have any effect.  Because if they do then that will tell him that the disease is there, even if I tested false negative, as some of the population does.
Only 2% of the people out there get this disease.
How.
Did.
I.
Get.
To.
Be.
So.
Lucky?

OK, enough of this pity party post.  I hate these, which is why I rarely tell anyone what's really going on.
I am SO sick of things "going on" and being the person that other people feel sorry for.  I am not that person .... I don't like it and I don't handle it well.  So when I finally break down and say that I'm not feeling well, it's because it's been going on so long that I have to finally let it out.

Now I will end this on the UP, UP, UP side.
I asked the dr., "If it turns out that I do have RA, what kind of exercise can I do?  Can I still play tennis?"
He said, "Certainly.  I know it's important to you since you've already mentioned it 3 times and yes you'll be able to play.  You won't be able to play if you're having a flare up (like right now) because it's not good on your joints to play when they're swollen.  But yes, you can play.  I play tennis also and know how much it means to you.  So that's my job .... to get you back on the courts."
I think I almost fell in love with him at that moment.
And I tried very hard to not cry in front of him .... again.
:)

So there you go, Peeps.
My life today.
Could be worse.
Could be better.

It is what it is.

Happy Wednesday, Peeps.
:)

7 comments:

Angela said...

Hi! I'm a lurker! A while back, before your shoulder surgery, you asked people to post funny things for you to read. I meant to post this then, but never got a around to it. My dad sent this to me and I thought it was soooo funny! I thought you might think it was funny to. And by NO MEANS do I think you fall in to this category, I just thought it might give you a laugh!

Old and Middle Aged Texting Codes
ATD -at the doctor

BFF -best friend fell

BTW -bring the wheelchair

BYOT -bring your own teeth

FWIW -forgot where I was

GGPBL -gotta go, pacemaker battery low

GHA -got heartburn again

IMHO -is my hearing aid on?

LMDO -laughing my dentures out

OMMR -on my massage recliner

ROFLACGU -rolling on floor laughing and can't get up

TTYL -talk to you louder!

-Angela

susan said...

glad things are somewhat better today!

Anonymous said...

Sending you hugs and love and praying that tomorrow will be an even better day than today!

Anonymous said...

I'm gonna say it...This RA crap totally sucks!! You don't deserve this and I'm completely ticked off!!
I also know you and you will meet this head on and will be back on the tennis court in short order. And another thing...you are beautiful, funny,caring, and smart and you will feel like yourself again soon. Besides, slowing down just a bit may mean you actually have time to date!!
I love you and am praying for wisdom for your doctor in finding the right meds for you, and fast.
Vicki

Anonymous said...

Don't know if I've ever commented before, but read frequently. I'm 52, with Hashimoto's thyroid disease, fibromyalgia, and IBS, and have had a 5 year, very loving relationship with a (now 40 year old) man who loves me "hugely" and knew what baggage (and thigh flappage!) I came with. Superficial men will care; those who aren't superficial won't. Hang on and lots of good wishes for you!

Marie said...

It is hard not to have a pity party without a spouse to lean on. Since I am the only parent, I feel terrible when i have to call someone to help with my kids because I am sick. You can only do so much - I know I need the help but hate asking for it and feeling like I am complaining. We all have our health issues - I have to believe there is someone else out there for us! It is too depressing thinking I am only 37 and will never be married again! I hope you are feeling much better soon!

Nat said...

So sorry to hear about your ongoing pain. I'm hoping and praying that maybe you've just overdone it with all your travels, your surgeries and the stress and your body is just in rebellion. IJNF-it's just not fair!
Love you!